by icky » Tue Feb 26, 2013 10:27 am
It's 26 months since I last made an entry into the forum (this topic). Well, I still have my prolactinoma and my general health is still very much as at was then. Unable to get around much, very short of breath after the slightest exertion. sleep problems. All this is probably due to my heart condition though. I was considered for surgery to remove the ever-growing tumour but this didn't go ahead due to its position and intimate contact with nerves & blood vessels. So I went for a five week daily course of radiotherapy as a result and now have to wait 6 months or so before any significant fall in prolactin levels can be seen. I get the results next month.
One thing though, for about 5 years now, my nose has been almost constantly running (rhinorrhea) with a clear, very watery, salty liquid, far more than appears when your eyes are watering. I mentioned it to my endocrinologist and he dismissed the idea that it was anything to do with my pituitary condition. Since then I saw something on the internet which caused me to google "prolactinoma meningitis rhinorrhea" This came up with a large amount of info about the tumour damaging some structure causing cerebo-spinal fluid to drain into the sinuses with a subsequent meningitis risk. Has anyone else experienced this? It's quite rare and I'm quite prepared to accept that I'm being a touch hypochondriacal (new word!) about it all but its been going on for about five years and I'm a bit fed up of it now.