Prolactinoma in Children

Hello, is there anyone out there who has/is a a child/teenager with a prolactinoma?
My 11 year old son was diagnosed with a giant prolactinoma (4cm x 2.5 cm) on 16th December, following a series of eye tests. It was pressing on his optic nerve, so he had surgery (through the nose) and most of the tumour was removed on Wednesday 22nd December by an amazing surgeon at Great Ormond Street hospital. Because of the speed with which everyone reacted, his sight has returned, for which we are so, so grateful. He's now taking cabergoline weekly. He's back at school on short days at the moment, and just this weekend seems to have got some of his energy back. We have an appointment with the endo team tomorrow and it seems like his prolactin levels are coming down, but I have so many questions! It would be great to know if anyone else is going on this scary journey. From what I've read, it's unusual to find such a large prolactinoma in a child...
My 11 year old son was diagnosed with a giant prolactinoma (4cm x 2.5 cm) on 16th December, following a series of eye tests. It was pressing on his optic nerve, so he had surgery (through the nose) and most of the tumour was removed on Wednesday 22nd December by an amazing surgeon at Great Ormond Street hospital. Because of the speed with which everyone reacted, his sight has returned, for which we are so, so grateful. He's now taking cabergoline weekly. He's back at school on short days at the moment, and just this weekend seems to have got some of his energy back. We have an appointment with the endo team tomorrow and it seems like his prolactin levels are coming down, but I have so many questions! It would be great to know if anyone else is going on this scary journey. From what I've read, it's unusual to find such a large prolactinoma in a child...