Hello

Hello

Postby member_44338 » Thu Feb 22, 2018 8:23 pm

Hi:

I am a new member and would like to introduce myself. I am a man, 65 years of age, and I have a damaged anterior pituitary gland. My pituitary does not produce cortisone or human growth hormone (hgh). I suffered a concussion after a fall in 2011, and this caused my problem. It took over a year to diagnose my condition accurately. Curiously, it was my ear nose and throat specialist who diagnosed my condition. That man saved my life. Since my condition initially presented with severe muscular pain, everyone thought I had fibromyalgia rheumatica. My cortisone deficit was so low that doctors wondered how I could walk. I look forward to sharing information with individuals who have a hypopituitary condition.

Sincerely,
Robert
member_44338
 
Posts: 4
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Re: Hello

Postby member_41389 » Thu Feb 22, 2018 9:07 pm

Hi Robert
Welcome to the forum, I'm afraid it's a bit sluggish at times but we're trying to resolve this.
I'm hypopituitary as well, except for the acromegaly, so on hydrocortisone as well. You'll find some helpful stuff in the publications on this website. Its also worth having a look at the Addison's Disease Self Help Group website http://www.addisons.org.uk where there is also a lot to help.
It's also worth seeing if there's a local support group near you; it can be very lonely as a pituitary patient stuck with GP who have never seen one before and people who think that you are cured because you're taking the tablets.
All the best
Tim
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Posts: 116
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Re: Hello

Postby steve » Fri Feb 23, 2018 9:15 am

Welcome to the forum.
Although the forum is quiet, questions tend to get answered reasonably quickly.
Regards, Steve
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Joined: Mon Jul 28, 2014 8:12 am

Re: Hello

Postby MikeDCross » Fri Feb 23, 2018 4:56 pm

Welcome to the forum.
MikeDCross
 
Posts: 134
Joined: Mon Sep 28, 2015 8:29 am

Re: Hello

Postby Marc_U » Fri Feb 23, 2018 7:21 pm

Hi Robert,

Likewise welcome to the forum.

There is a lot of good info here, and though it can be a bit quiet at times, there are several people who are willing to offer advice and/or encouragement.

Regards,

Marc
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Posts: 14
Joined: Wed Dec 06, 2017 3:52 pm


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