Post Op - What Happens?

Post Op - What Happens?

Postby member_41643 » Mon Feb 09, 2015 2:25 pm

Hi All

So my pit tumour was taken out and I was sent home three weeks ago but now what happens? I have a follow up appointment with the hospital in another three weeks, but do I need to be contacting my GP due to my on going problems with DI or the Endocrinologists to see if I need a change in medication? My GP doesn't seem to understand DI and I'm not sure who else to turn to. I'm feeling rather lost now!

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Re: Post Op - What Happens?

Postby George » Mon Feb 09, 2015 3:03 pm

Hi James
I had my Pituitary Op over 24 years ago. Some months after the OP I has a session of radiotherapy.
When you are going back to hospital is it to the Endo department ?
Did you get a hand out on "stuff to look-out for and if so call this number ......" ?
I also found my GP is no expert on this.
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Joined: Tue Sep 07, 2010 10:23 am

Re: Post Op - What Happens?

Postby Carl » Mon Feb 09, 2015 4:48 pm

Hi James

There are lots of publications on the Pituitary Foundation website here ... lications/

There is one on DI and one on 'post surgery' which may be of use. I had a very good Endocrinologist who gave me his email address to get in touch if I had any concerns after the operation....It would be your Endo I would turn to in the first instance if you have any concerns. My GP was very good, but he doesn't deal with these kinds of conditions every day like the Endo does. I had DI after my operation which thankfully went away on its own, but it isn't a condition I would want to manage without some support, so definitely get some advice from your Endo or even the Foundation's own Endocrine helpline on ... -helpline/ Of all the aspects of my tumour before and after the operation, my most hated part was the DI, it really did my head I don't envy you it.

AfterI had my surgery, I had lots of blood tests and field tests done on my eyes to make sure my sight was returning to normal. It took quite a while (6-8 weeks) for my bloods to start returning to normal, then I had a few more tests to see what hormones needed replacing long-term....which in my case was Cortisol and Testosterone.

There are so many different outcomes depending on what kind of tumour you had, it is always best to get a plan for you, and what your needs are.

Hope you get some answers soon.

Cheers, Carl
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Re: Post Op - What Happens?

Postby member_41643 » Thu Mar 05, 2015 4:20 pm

Thank you for the replies both, I'm sorry for the tardy response, it's been one of those months!

I'm still in limbo after the operation. I've got a few problems that I want to discuss with a doctor but no one seems to want to know. I've spoken to my GP again who shrugged his shoulders and told me to speak to the hospital that performed the operation. They in turn told me to wait for a follow up appointment but it's already near six or seven weeks now. I tried my own Endo nurse but she told me to go through my GP and I'm back at square one!

Spoke to Alison who was very very helpful. I know the tests I need, now I just have to find out how to get them.
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Joined: Mon Jan 19, 2015 10:49 am

Re: Post Op - What Happens?

Postby member_31784 » Mon Mar 09, 2015 8:25 pm

Hi James

Speaking to Alison was a good idea.Sorry to hear of your endo nurse response. My endo dept has a team of specialist nurses whom Ive found really helpful. Even my GP says to phone them as obviously they know more than he does, in fact I never go to the GP with pit related issues.
Good luck.

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Joined: Tue Sep 07, 2010 10:24 am

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