RADIO THERAPY. LONG TERM PROBLEM

RADIO THERAPY. LONG TERM PROBLEM

Postby peteromalley » Mon Jul 16, 2012 5:48 pm

I'M GOING BACK A BIT. I HAD RADIOTHERAPY THIRTY EIGHT YEARS AGO, FOR 28 DAYS. THIS WAS AFTER HAVING MY PITUITARY GLAND AND THE TUMOR REMOVED. (CRANIOPHARINGYOMA.)
I HAVE LOST NEARLY ALL MY SIGHT NOW, HENCE THE CAPITALS ON THIS SCREEN.
MY ENDO SPECIALIST AND MY ORTHOPTIC SPECIALIST SPOKE TO EACH OTHER AND DID SOME RESEARCH.
THE ONLY REASON THEY COULD COME UP WITH, FOR LOSING MORE AND MORE OF MY EYESIGHT, IS THE CONTUNING EFFECTS OF THE RADIOTHERAPY.
FOR SOME STRANGE REASON, THE RADIOTHERAPY IS STILL DAMAGING MY SIGHT. THE DOCTORS DO NOT KNOW, IF I COULD WAKE UP TOMORROW COMPLETELY BLIND OR, THE SIGHT JUST DWINDLE AWAY OVER A PERIOD OF YEARS OR, THE SIGHT STAYS THE SAME AS IT IS TODAY.
OVER THE PAST 38 YEARS, MY CONDITION HAS CONTINUALLY HAD THE KNACK OF SURPRISING ME......JUST WHEN I THOUGHT IT WAS SAFE........ ALONG COMES ANOTHER PROBLEM...
IF ANYONE OUT THERE HAS RELEVANT INFO ABOUT THIS, LET ME KNOW.
PETER.
AS AN UPDATE TO THE ABOVE POST.
I HAVE ALSO NOW SEEN A HEARING SPECIALIST AND AFTER TESTING ME INTENSIVELY, HE DIAGNOSED ME WITH VESTIBULAR NEURONITIS.
THIS MEAN, THE NERVES TRANSMITTING SOUND TO BRAIN, WERE DAMAGED BY THE RADIOTHERAPY BACK IN 1974.
I HAVE WHAT MIGHT BE TERMED AS TINITUS. A CONSTANT SOUND IN MY EARS, WORSE IN THE RIGHT EAR. ON OCCASIONS IT DOES DRIVE ME MAD. I HAVE TO HAVE SOME EXTERNAL NOISE ON ALL THE TIME, E/G T.V. RADIO OR MUSIC. WHEN I GO TO SLEEP, I PUT ONE EARPLUG IN MY RIGHT EAR, THE WORST ONE. THIS IS BECAUSE IF I THINK I HAVE HEARD A "NOISE", WAS IT IN THE HOUSE, OR MY TINNITUS? IF I HEAR A NOISE IT HELPS ME DECIDE WHERE THE NOISE IS COMING FROM.
SO ALL IN ALL. THE RADIOTHERAPY DAMAGED MY TEETH.MY SIGHT AND MY HEARING. WAS IT WORTH IT. THE ANSWER IS YES.
HAD I NOT HAD RADIOTHERAPY, THE PITUITARY TUMOR COULD HAVE RETURNED AGRESSIVELY. BACK IN THE 1970s RADIOTHERAPY WAS STILL QUITE NEW. DOSES THAT WERE GIVEN THEN, WOULD PROBABLY CONSIDERED TOO HIGH A DOSE NOW.
BUT WE ALL KNOW ABOUT HIND SIGHT!
BYEEE. PETER O
peteromalley
 
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