Anyone fancy a missing arm... or leg!?

Anyone fancy a missing arm... or leg!?

Postby member_6285 » Fri Jan 29, 2016 5:53 pm

Does anyone else sometimes wish they had a body part missing? I do get fed up of the "There's nothing wrong with you - just look at you!" comments

I now have a chart explaining my condition and possible scenarios for work , just for new staff.
member_6285
 
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Re: Anyone fancy a missing arm... or leg!?

Postby Carl » Sun Jan 31, 2016 2:44 pm

I know what you mean, I guess it is always the same for people with unseen diseases like Pituitary, Addisons or Diabetes. The thing is with the rarer diseases people have never heard of it does take a lot more explaining. With all the explaining and research I've done over the last couple of years, and reading sites like this one it does make you quite an expert patient which I'm quite proud of - and at the end of the day who else is going to look after you but yourself!

Certainly I'm quite fond of my limbs, so I'll stick with a couple of hydrocortisone tablets a day and a testosterone jab every 10 weeks :-)
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Re: Anyone fancy a missing arm... or leg!?

Postby Pat » Tue Feb 02, 2016 9:26 am

The invisible illness indeed!

If we had a plaster cast on our leg there'd be much more understanding.
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Re: Anyone fancy a missing arm... or leg!?

Postby plum » Wed Feb 03, 2016 8:35 pm

yup - i'm up for that. a bandage on my wrist for days when i am feeling not quite there
good idea!
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Re: Anyone fancy a missing arm... or leg!?

Postby peteromalley » Wed Apr 27, 2016 6:50 pm

WELL THANKS FOR THAT.
IT HAS BEEN THE STORY OF MY LIFE...."BUT YOU DON'T LOOK ILL!"
WHO WANTS TO LOOK ILL.
I HAVE A BLUE BADGE NOW FOR WHEN I GO OUT WITH FRIENDS.
AND AS A COMEDIAN PUT IT.
I PUT MY BLUE BADGE ON THE DASHBOARD OF THE CAR.
I THINK, I AM THEN MEANT TO OPEN THE DOOR WIDE AND FALL HEAVILY ONTO THE TARMAC.
THEN DRAG MYSELF ACROSS THE CARPARK, TO THE TROLLEY BAY, PULL MYSELF UP ONTO A TROLLEY, PUT IN MY POUND COIN, AND THEN STAGGER ACROSS THE CAR PARK TO THE SUPERMARKET.
THAT WAY, PEOPLE WOULD REALISE I AM DISABLED.

I GET OUT THE CAR WITH MY WHITE CAIN, EXTEND THE CAIN AND WALK TO THE SUPERMARKETS.
I CAN FEEL THE DIRTY LOOKS AND THE KNIVES IN MY BACK FROM PASSERS BY.
SERIOUSLY.
IN WORK SITUATIONS, FEW EMPLOYERS MAKE ANY ALLOWANCES FOR A PITUITARY SUFFERER.
THEY MAY START OFF WITH THE BEST WILL IN THE WORLD...BUT EVENTUALLY YOU PART COMPANY BY MUTUAL AGREEMENT!
BECAUSE WHEN SOMETHING GOES WRONG, THE BOSS CANNOT EXPLAIN WHY YOU ARE NOT ABLE TO DO A PARTICULAR JOB,
TO OTHER EMPLOYEES. NOT NICE. NO LEGAL EMPLOYMENT ACT COVERS US! BECAUSE.......WAIT FOR IT......
WE DON'T LOOK ILL.
PETER
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Re: Anyone fancy a missing arm... or leg!?

Postby plum » Fri Apr 29, 2016 2:13 pm

too true....but thanks for the laugh as well...
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