Nasty smell etc.

Nasty smell etc.

Postby Mgh » Fri Apr 04, 2014 5:26 pm

This is a copy of my post under surgery heading.
I have searched to see if there is any discussion about problems similar to mine. The only reference I have found is this 'despite some medication for blocked sinuses I have a disgusting taste and smell in my mouth'. This was written by a forum contributor fairly soon after her transphenoidal surgery for a non functioning macroadenoma.
I am now nearly three years post surgery and have experienced a similarly disgusting smell. Last year, after some weeks of a build up of smell and recurring infections, a large lump of something came in to my mouth. It was sent off for histology and I was told it was 'infected flesh but nothing sinister'! Once again the smell started in late December and last month another lump came through. The smell swiftly disappeared.
If there is anyone else out there with a similar experience, I would love to hear from you and if and how you got to the root of the problem and what helped improved the situation.
Mgh
 
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Re: Nasty smell etc.

Postby Flower » Sun May 04, 2014 9:26 am

Hi Mgh,

I have had similar issues with recurrent unpleasant smell in my nostrils, discharge, severe headaches, facial pain and chronic sinusitis since having surgery 12 years ago. This also affects my throat as there is a constant drip in to my mouth which adds to the mucus/congestion which gathers.

Although some investigations have been undertaken by the ENT specialist, they have not been able to pinpoint the cause though I did not have these problems prior to transphenoidal surgery. One side of my nostril is so narrow that an endoscope can't be passed on this side and this now makes breathing through my nose very difficult. At night I breathe through my mouth which seems to add to these problems.

It seems that my problems are chronic and I just obtain antibiotics from my GP when I feel the need to treat it, but I would advise you to pursue a thorough investigation to try to prevent it becoming a permanent problem as in my case.

Hope you manage to resolve or at least improve your symptoms.

Flower
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Re: Nasty smell etc.

Postby Mgh » Mon May 05, 2014 6:33 pm

Thank you Flower for your reply. Indeed you seem similarly afflicted but for much longer than me. Your symptoms sound very similar to mine. I would add very cold nose and cheeks. This extreme cold was something I noticed prior to diagnosis of the tumour but I had so many other symptoms that I can no longer recall them all! The diagnosis eventually came while following up on my accelerating eye symptoms. I wonder if the root of my present 'sinus' problem was there prior to the transphenoidal surgery.
I have optic nerve damage as a result of the tumour. I also have memobian cysts on the eyelid of the same side as the 'sinus' problems. As a mere, non-medical mortal, I wonder if there could be other nerve damage which might contribute towards what is considered to be 'sinus' issues. Who knows? Who cares? Who is interested?
I have been experimenting myself with various ways of easing some of the symptoms and trying to prevent another infection. It must be very difficult for you still experiencing these problems after 12 years. From what you said, I assume your GP give you anti-biotics without question.
I will add a bit more later about my experience of the impact that this type of problem can have.
All the best and hope you stay well.
Mgh
 
Posts: 129
Joined: Mon Jun 27, 2011 12:25 pm

Re: Nasty smell etc.

Postby plum » Wed May 07, 2014 8:45 am

hi
have they ruled out mucoceles in your case? because it seems that there is some sort of procedure that they can do to deal with it, if it is very bad.
i've had a dripping nose ever since transsphenoidal surgery and my nose does seem to get v cold v quickly. but clearly am fortunate that i don't have the other symptoms that you both mention.
in my case the ENT doctor said there is a mucocele (either 1 or two, i cannot remember) which is responsible for the dripping. giving it a name doesn't seem to have made the problem go away..... but the ENT doctor also said that there was some surgical thing that she could do, but she preferred not to 'go in' if possible, given the other risks associated with surgery, so long as i could put up with the drips. which i do, but then i don't have such severe symptoms. it seems to come and go in phases and sometimes the mucocele shows up in MRI as 'nearly empty'.
best wishes
plum
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