What is your rare disease experience?

What is your rare disease experience?

Postby Pat » Tue Jan 08, 2013 2:20 pm

What is your rare disease experience?
Please spare 10 minutes to give us a clearer understanding of the impacts of rare disease.
Please go to our website main page for survey link.

Many thanks
Pat
 
Posts: 323
Joined: Tue Sep 07, 2010 2:25 pm

Re: What is your rare disease experience?

Postby Mgh » Wed Jan 09, 2013 2:15 pm

I have tried the link but it tells me I have already completed the survey. As far as I know, I haven't. I didn't think my memory was that bad!
Mgh
 
Posts: 126
Joined: Mon Jun 27, 2011 12:25 pm

Re: What is your rare disease experience?

Postby andypandy » Thu Jan 10, 2013 6:24 am

it said i had competed it too......and as far as i can remember i haven't!!
andypandy
 
Posts: 15
Joined: Wed Jun 06, 2012 3:10 pm

Re: What is your rare disease experience?

Postby Pat » Thu Jan 10, 2013 11:11 am

Apologies, I'll have the link sorted and posted correctly.
Pat
 
Posts: 323
Joined: Tue Sep 07, 2010 2:25 pm

Re: What is your rare disease experience?

Postby Pat » Fri Jan 11, 2013 9:10 am

The correct link is now on our home page on right hand column

thanks
Pat
 
Posts: 323
Joined: Tue Sep 07, 2010 2:25 pm

Re: What is your rare disease experience?

Postby Danny » Mon Jan 14, 2013 3:27 pm

it told me the same last week and i actually believed it knowing how bad my memory is sometimes :lol: will try it again and see if i have or havent done it already!
Danny
 
Posts: 58
Joined: Tue Sep 07, 2010 10:52 am
Location: west yorkshire


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