Recent press release

Recent press release

Postby member_32969 » Wed Jul 04, 2012 9:31 pm

I cant open the press release news about the pituatry patient who died of thirst :?
Posts: 10
Joined: Mon Mar 21, 2011 2:34 pm

Re: Recent press release

Postby plum » Thu Jul 05, 2012 9:04 pm

here it is, copied and pasted:

Emergency Care for Patients with reduced Pituitary function
Following the sad news that came to light during the inquest into the death of Kane Gorny
What can go wrong even in the most routine of hospital settings

Bristol, 4 July 2012 – The Pituitary Foundation, the UK’s only charity dedicated to the needs of patients with pituitary disorders, today announce the importance of medic awareness in patients with impaired pituitary function.
Following the sad and recent news of Kane Gorny, it has highlighted that many medical professionals are not aware of the importance of vital hormones that need to be replaced in pituitary patients. Something that the Pituitary Foundation’s member base continues to testify to. Many patients require frequent and regular medication in order to keep them from serious and fast deterioration.
Almost all Pituitary Patients go on to live very normal lives post diagnosis, with endocrinology consultants and specialist nurses fulfilling an important role in the return of quality of life to patients who suffer with Pituitary disease. However, in some emergency settings, outside of the scope of endocrine departments, health professionals have little or no knowledge of the many and various related conditions that can be seriously harmful, or in deed fatal.
For example Hydrocortisone is a steroid replacement hormone that medically replaces a naturally-produced and essential hormone called cortisol. It is taken by many people who have pituitary disease, as their condition causes them not to be able to produce this hormone naturally. Cortisol is essential in defending the body from stress, injury, illness and infection, maintaining blood pressure and many more things.
Diabetes Insipidus is also a condition that requires medication to manage it effectively. Without such medication (DDAVP or Desmopressin) the condition will cause patients to become dangerously dehydrated.
The Pituitary Foundation would like to encourage both patients and medical professionals alike to learn more about the potential effects of missing their medication. The Foundation offers a patient helpline for those who may be alarmed about the consequences. Literature written specifically for medical professionals is also available for those who would like to learn more. The Foundation have a 20 strong medical committee including consultants and other medical professionals which continue to support the charity and their patients with advice.
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