Panhypopituitarism

Panhypopituitarism

Postby Tracey » Fri Oct 15, 2010 11:19 am

I am a parent of a child with Panhypopituitarism, are there anymore of us out there? :)
Tracey
 
Posts: 19
Joined: Tue Sep 07, 2010 10:24 am

Re: Panhypopituitarism

Postby tjd » Fri Oct 15, 2010 11:51 am

There are loads of us. If you want to chat let me know
tjd
 
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Re: Panhypopituitarism

Postby rochellerudy2010 » Tue Oct 26, 2010 10:29 am

Hi

I am a parent of a 9 year old boy with panhypopituitarism as a result of a craniopharyngioma (benign pituitary tumour). He was diagnosed back in June 2007 and following surgery, he developed panhypo.

He takes all usual meds, including Thyroxine, Hydrocortisone, GH and Desmopressin.

Life aint so easy sometimes.
I find it very difficult being a parent of a child with Taylor's conditions and i am currently trying psychodynamic therapy!

Rochelle
xx
rochellerudy2010
 
Posts: 2
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Re: Panhypopituitarism

Postby Tracey » Fri Oct 29, 2010 10:34 pm

Hi Rochelle

My daughter is now 11

She has had Panhypopituitarism since she was 7 and also takes Thyroxine, Hydrocortisone, GH and Desmopressin

I find it hard work reminding her to take her meds, her memory is not good since Radiotherapy and I find my mind is a medicine clock these days :D
Tracey
 
Posts: 19
Joined: Tue Sep 07, 2010 10:24 am


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