Panhypopituitarism

[Tracey]

I am a parent of a child with Panhypopituitarism, are there anymore of us out there?

[tjd]

There are loads of us. If you want to chat let me know

[rochellerudy2010]

Hi

I am a parent of a 9 year old boy with panhypopituitarism as a result of a craniopharyngioma (benign pituitary tumour). He was diagnosed back in June 2007 and following surgery, he developed panhypo.

He takes all usual meds, including Thyroxine, Hydrocortisone, GH and Desmopressin.

Life aint so easy sometimes.
I find it very difficult being a parent of a child with Taylor's conditions and i am currently trying psychodynamic therapy!

Rochelle
xx

[Tracey]

Hi Rochelle

My daughter is now 11

She has had Panhypopituitarism since she was 7 and also takes Thyroxine, Hydrocortisone, GH and Desmopressin

I find it hard work reminding her to take her meds, her memory is not good since Radiotherapy and I find my mind is a medicine clock these days