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Craniopharyngioma with cysts

PostPosted: Thu Jun 20, 2013 4:48 pm
by member_6464
Hi all,

1 year after I had craniopharyngioma removed, I started suffering
more terrible headaches. These lasted around six weeks at a time.
But by the end of 2005, they were getting to almost constant. In fact, they
were cluster headaches.

A further operation was had by myself in Jan '06 because a cyst got to big
and was interfering with already damaged eyesight. That year I had four ops
and radiotherapy injection into the shunt/reservoir inserted the drain the cyst.

What I world like to know, if any one else had/has these type of problems or worse?