Years undiagnosed

Re: Years undiagnosed

Postby member_42000 » Fri Jan 08, 2016 11:19 am

Hi Carl ,
Made me smile ,during the test I didn't respond to the drug so nephrogenic di is suspected ,I just wonder how much longer this can go on for as I feel dreadful can't eat anything salty as I've high sodium prob due to being dehydrated all the time ,my latest test which would have concluded it was cancelled yesterday frustrated.co with the whole lot .
Sally x
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Re: Years undiagnosed

Postby member_42000 » Fri Jan 08, 2016 6:03 pm

Hi Carl
Made me smile anyway , they think it's nephrogenic di but was due the test yesterday ,it was cancelled.so still feeling awful no treatment .i have high sodium all the time and am permanently dehydrated .cant wait to get some treatment but when.? This is awful
Sally x
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Re: Years undiagnosed

Postby member_42000 » Tue Jan 12, 2016 12:44 pm

Does anyone else have nephrogenic di
Thanks Sally x
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Re: Years undiagnosed

Postby member_42000 » Tue Jan 12, 2016 7:18 pm

Does anyone have nephrogenic di ?
Thanks sally
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Re: Years undiagnosed

Postby member_31784 » Tue Jan 12, 2016 8:54 pm

Sorry mines the other type but still a pain. Hope you get sorted soon. Kare
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Re: Years undiagnosed

Postby member_42000 » Mon Feb 08, 2016 10:32 am

Well here I am again went back to see my Endo 18th Jan no results what a waste of time .Hesnot seeing me till14th March ,I still feel dreadful every day and really don't know what to do with myself I can only hold fluids in for bout fifteen mins my face and hands are numb as the day goes on as the balance between water and salts are disrupted any help plz
Thanx Sally
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Re: Years undiagnosed

Postby member_42000 » Thu Mar 17, 2016 10:40 am

Hi I'm still waiting my tests were inconclusive endo not sure if I've di either cranial or nephrogenic ,but he is prepared to trial me on some medication see if that helps but I've to be carefull . X
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Re: Years undiagnosed

Postby member_42000 » Mon Apr 11, 2016 8:58 am

Hi it's sally again,
I'm currently still unofficial diagnosed but trrialing the drug for nephrogenic di ,it's a miracle the fountain is stopping it has made such a difference I hope that this clinches the diagnosis thanxsally
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Re: Years undiagnosed

Postby Pat » Mon Apr 11, 2016 10:30 am

Hi Sally

Good news something is helping you - what a journey you've had.
I'm so pleased for you and hope firm diagnosis is soon.

take care

pat
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Re: Years undiagnosed

Postby member_42000 » Mon Apr 11, 2016 11:32 am

Thankyou pat you've been a great support,lots of things are starting to make sense now I hope even the nerve damage improves with time .But for now halted my toilet trips which is great x
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