Postby Pat » Fri Apr 05, 2013 10:33 am

This questionnaire is intended for steroid-dependent members of the ADSHG, AMEND, Living with CAH and the Pituitary Foundation. It asks about your experiences of adrenal emergency, when you have needed emergency steroid treatment additional to your normal replacement steroids, and the likely causes of those emergency experiences. It should take you no more than 10 - 15 minutes to complete.
We will be sharing the findings with our advisory medical panels, the Society for Endocrinology's Clinical Commitee, London Ambulance and other medical practitioners with an interest in the health service needs of those with steroid-dependence.
We hope the insights from this survey will help to improve health service provision in the UK and Republic of Ireland for the future. Thank you for taking the time to complete it.
From the trustees of the Addison's Disease Self-Help Group, AMEND, Living with CAH and the Pituitary Foundation

The link to the survey is:
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